Rebecca is our angel. She was born with CytoMegaloVirus that affected her brain – basically making 1 side smoother than the other. Due to this, she is unable to walk, talk, or do other left-side brain activities. However, she is a happy girl who loves her sisters and friends at school, and is especially fond of babies. She has a knack for cheering up those around her with her coo’s and smiles. She is a joy to have in our family and makes us feel blessed.
In recent news, she has struggled (actually for 2-3 years) to gain weight. She has weighed around 27 pounds since she was about 4. At 7, this was looked at by the doctors as a bad thing. She is healthy and strong, just not gaining weight. Because of this, it was decided to give her an enteral (stomach) feeding tube. She has 3-5 cans of formula per night that is fed through a pump into her system as she sleeps. Because of this, she has gained about 5-7 pounds in 3 months. It is definately been a big help. However, it has taken some getting used to. Because she “eats” all of her calories at night, she does not eat at all during the day. This was a big change, since we didn’t need to constantly worry, “Is she eating enough?”, “It is time for Becca to eat again?”
If you have any questions about her condition, check out the linked pages about CMV.
Stay updated on the kids here.
